Dialog Box


Being Involved in Decision-making

It's important to have a good understanding of the benefits and risks of different treatments. This means you can weigh up different treatment options and make informed decisions. 

Patients and family carers should feel involved in the decisions that health care providers make. You should feel comfortable about raising concerns or asking questions.

We run an MND Advisors service. Our advisors provide support to those diagnosed with MND and their families. They can help you navigate the health system as well as assisting you to source aids and equipment items.

Advance Care Planning involves having conversations with your loved ones and making your wishes known . . . sooner rather than later. Advance Care Planning tools include wills, advance health directives, enduring power of guardianship, enduring power of attorney and advance care plans. Palliative Care WA provide a free phone line 7 days a week with information and support on Advance Care Planning. Free community workshops on Advance Care Planning are run regularly.



Jack often feels intimidated by the specialists involved in his wife’s care. He doesn’t feel confident to ask questions when there are things he doesn’t understand, and he feels like they do not listen to his concerns.

His MND Advisor encourages him to re-connect with his social worker who can help him build his confidence to be more assertive. Jack has started taking a notebook to appointments. This allows him to record the discussions as well as write down questions he wants to ask. This has helped him feel less overwhelmed and flustered.

We would love to hear your feedback on the MND Family Carers Information Toolkit. Please click here to fill out the feedback form.
feedback form