Being Involved in Decision-making

It's important to have a good understanding of the benefits and risks of different treatments. This means you can weigh up different treatment options and make informed decisions. 

Patients and family carers should feel involved in the decisions that health care providers make. You should feel comfortable about raising concerns or asking questions.

We run an MND Advisors service. Our advisors provide support to those diagnosed with MND and their families. They can help you navigate the health system as well as assisting you to source aids and equipment items.

Advance Care Planning involves having conversations with your loved ones and making your wishes known . . . sooner rather than later. Advance Care Planning tools include wills, advance health directives, enduring power of guardianship, enduring power of attorney and advance care plans. Palliative Care WA provide a free phone line 7 days a week with information and support on Advance Care Planning. Free community workshops on Advance Care Planning are run regularly.

Links

• MNDAWA Advisors Service
• Partnering with your health care provider
• Shared decision-making
• Office of the Public Advocate – information on making decisions about the future
• Palliative Care WA FREE phone line with information and support on advance care planning, palliative care, and grief and loss
• You Only Die Once – guide to advance care planning including resources and information on community workshops
• Palliative Caring Booklet -information for families and carers who are caring for a person with a life-limiting illness or condition
• Palliative Care WA – FREE community workshops on palliative care