The Motor Neurone Disease Association of WA organises a range of different support groups and events throughout the year.
Some are monthly gatherings and others are bi-annual or annual events. MNDAWA’s support groups and events enable people living with MND and their families to feel connected, guided and supported through their journey with MND. The different groups and events are listed below. Please note that some of the monthly functions are planned on weekends occasionally and dates are advertised well in advance.
For more information please contact the office:
Phone: 6186 4133
Carer & Past Carer Lunches
The Motor Neurone Disease Association of WA would like to invite carers and past carers to come along and enjoy a meal together in a supportive environment and share ideas with each other about caring for someone with Motor Neurone Disease.
Lunches are advertised in our newsletter and on our event page of our website or you can contact the MNDAWA office for further information relating to venues and times.
Conversations with MND
This is a private Facebook group for MNDAWA clients, carers, family and supporters. It is a private space to ask questions, discuss challenges and wins and to share your invaluable experience with others.
MNDAWA hold three Pamper Days each year. The event is open to people living with MND and their close friends and family to come and enjoy a wide range of pampering together with some light refreshments from 10am-2pm.
Various therapies are offered and include but not limited to; manicures, massage, reiki, and kinesiology.
Pamper Days are a wonderful opportunity for people living with MND and their families to come together and be treated to different therapies.
Please call the office on 6186 4133 for more information on our next Pamper Day.
MND Genies is an online support network and closed Facebook group for people who have motor neurone disease related genetic mutation, but do not have MND.
About 10% of people diagnosed with MND have a familial form of the disease. Of these, about one in five have a mutation on the SOD1 gene and about two in five have a mutation on the C9ORF72 gene. These mutated genes can be passed down through families and children can inherit the mutated gene.
The aim of MND Genies is to provide a space where people can connect and share their experience of having an MND related genetic mutation.
MND WA and NSW do not endorse comments or posts made by group participants.
To join MND Genies or for more information about the group, contact MND NSW at email@example.com of phone 02 8877 0999.