Family and friends play an important role in caring for their loved one with Motor Neurone Disease (MND).
Whilst the focus is often on the person with MND, we recognise that you might need extra support and information to help you through this time.
The aim of this Information Toolkit is to give family carers a single location to find information or to direct them to resources designed to help address their needs.
Understanding MND
Understanding Motor Neurone Disease (MND) is an important first step when receiving a diagnosis.
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Supports for Providing Personal and General Domestic Care
A large part of caring for a person with a life-threatening illness at home is providing personal care.
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Emotional and Spiritual Support
A diagnosis of MND can bring up worries and fears, and it can help to talk about these, so they don’t start to feel impossible to deal with.
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Who to Contact
We run an MND Advisors service. Our Advisors provide support to those diagnosed with MND and their families.
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Being Involved in Decision-making
It's important to have a good understanding of the benefits and risks of different treatments.
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Financial, Legal and Work Issues
Caring for a loved one with a life limiting illness can create a range of financial, legal and work issues that you may not have had to manage before.
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Respite Options
Caring for someone 24 hours a day, seven days a week can be exhausting. It’s completely normal to need regular breaks from caring, including overnight breaks.
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Looking After Your Own Needs
Taking care of yourself is an important aspect of caring; ask support from your family and friends who are usually very willing to support you.
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Managing Your Feelings and Worries
Caring for a loved one with Motor Neurone Disease can be emotionally demanding and it’s normal to feel grief, sadness and fear.
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