Information Resources

There is an extensive amount of information available on the internet about Motor Neurone Disease (MND). It is important to be mindful that anyone is able to publish information online and not all of it will be factual or scientifically proven.

Through MND Australia, we can provide the following resources to help you become accurately informed about MND. If you are concerned or confronted by the information you read please do not hesitate to contact the office and speak to one of our MND Advisors.

For more information you can download the following resources:

Facts about MND

Some Facts About Motor Neurone DiseaseDownload facts

Motor Neurone Disease More FactsDownload facts

MND Australia Background Information on MND February 2021
Download facts

Living Better For Longer

• Living with MND During the COVID-19 Pandemic
• MND Evidence Based Treatments and Support - an overview (EB1)
• Multidisciplinary Care (EB2)
• Riluzole (EB4)  
• Breathing and Motor Neurone Disease: an introduction (EB5) 
• Breathing and Motor Neurone Disease: what you can do (EB6):Tips to help you manage respiratory symptoms and stay more comfortable (2 pages) 
• Breathing and Motor Neurone Disease: medication and non-invasive ventilation (EB7): An overview of using non-invasive ventilation and medications to manage breathlessness (2 pages) 
• Considering Gastrostomy - PEG and RIG (EB8): Information about gastrostomy as a way to improve nutrition (2 pages) 
• Physical Activity and Motor Neurone Disease

Meeting the Health Needs of People with Motor Neurone Disease

• This is a plain English fact sheet for people with motor neurone disease. It gives information from a study on the health needs of people with motor neurone disease.
• This fact sheet is for families, friends and carers of people with motor neurone disease (MND). It provides information on a recent study on the mental and physical health needs of people with MND
• This fact sheet is for people with motor neurone disease (MND). It provides information from a recent study on mental and physical health needs of people with MND.
• This information is for health professionals working with people with motor neurone disease (MND). It describes selected results from a study carried out by 3DN, UNSW Sydney.
• This fact sheet is for health professionals working with people with motor neurone disease (MND). MND is associated with neuropsychriatric symptoms including frontotemporal dementia, depression, apathy and disinhibition. Research from 3DN, UNSW Sydney.
• Talking with your GP or neurologist about MND and mental health

MND Family Carers Toolkit

Family and friends play an important role in caring for their loved one with Motor Neurone Disease (MND).  Whilst the focus is often on the person with MND, we recognise that you might need extra support and information to help you through this time.

The aim of our online Information Toolkit is to give family carers a single location to find information or to direct them to resources designed to help address their needs.  

For Healthcare Professionals & Service Providers

• Aspects of Care for the Primary Healthcare Team 2017: A detailed clinical guide for GPs and the primary healthcare team who are supporting people living with MND and their families. 
• Talking with Young People About MND for Health Professionals

Talking with Young People About MND

This extensive information pack will help parents to talk about MND with their children.  The series includes booklets for:

• Talking with Young People About MND for Parents: This document outlines how to keep communication with children strong
• Talking About MND for 8 to 12 Year Olds
• Talking About MND for Teenagers
• Talking About MND for Friends
• Talking About MND for Schools

Familial MND

• Familial MND and Genetic Testing

Cognitive & Behaviour Change

• Cognitive and Behaviour Change in MND

End of Life Care

• A Guide for People Living with MND

Planning Ahead

• Planning Ahead