New MND Community Nurse

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DEDICATED NURSE FOR MOTOR NEURONE DISEASE

As a result of funds received from a generous donor, the Motor Neurone Disease Association of WA (MNDAWA) is now providing a dedicated nursing resource to support people living with Motor Neurone Disease (MND) in WA over the age of 65 years.

Registered Nurse Ms Lynne Lomax has recently taken up the newly created position at MNDAWA to work alongside the MND Advisors and the multidisciplinary team who co-ordinate and liaise with specialists that are involved in the care of MND patients.

More than 2000 Australian’s are affected by MND, with two people diagnosed and two people dying each day of the disease. MND sufferers have an average life expectancy post diagnosis of 27 months, and there is currently 145people living with the disease in WA.

MNDAWA, in consultation with specialist MND Neurologists, identified a need for a MND nurse to provide nursing leadership and a clinical expert approach for patients who require more complex care. Maeve Egan, Executive Officer of MNDAWA collaborated with Kathy McCoy, Executive Director from Neurological Council of WA (NCWA) to assist in the development of a clinical governance structure to enable this specialist position to be part of the MNDAWA care model.

NCWA is recognised as an organisation with high-level governance and structure with extensive experience in delivering professional nursing roles.

Ms Egan said that ‘ thanks to this donation and the collaboration with NCWA, a dedicated resource is now available for MND patients, and to complement the existing service provision that our team offers to people living with MND in WA’.

MNDAWA is a registered charity supporting people living with MND, their carers and families. The Association has an MND Advisory Service providing care coordination and emotional support. They also offer support groups, information and education, equipment, wheelchair accessible transport, and funding.